by Pascal Angerhausen and Shweta Mishra
The inclusion of students with disability in higher education
Individual assessment accommodation is a widely used instrument for inclusion of students with disabilities. It aims at reducing barriers and promoting equal participation, by taking into account the individual needs of a person. However, our research in the project SuccessInclusive (ErfolgInklusiv) has shown that it can also create barriers and lead to new forms of exclusion. It shifts the responsibility to the individual and creates an additional bureaucratic burden for students and university staff. Further, there are issues of legitimacy associated with individual accommodation. If some students are treated differently from others, this raises issues of fairness and equality. Lastly, individual accommodation makes students dependent on those who provide it. We therefore urge universities and policy makers to rethink their focus on individual accommodation and prioritize universal design measures.
Individual accommodation and universal design in German higher education
Universities can choose between two different strategies to promote inclusion in higher education. Universal design and individual accommodation. Universal design aims to reduce or eliminate barriers for all, a priori, whereas individual accommodation consists of solutions that meet the individual needs of specific students. Both approaches have their own benefits and problems. Usually, a combination of the two is used to promote inclusion. If we look at German higher education, universal design plays a minor role. Even though universities are obliged to implement universal design measures, these are mostly limited to physical accessibility. Instead, inclusion in German higher education relies heavily on individual accommodation (Gattermann-Kasper/Schütt, 2022; Steinkühler et al, 2023).
Individual responsibility and bureaucratic burden
If students want to use individual accommodation in German higher education, they need to know about their rights. For many students, this is the biggest obstacle to using Disadvantage Compensation, as they either do not know about their rights or see themselves as entitled to it (Steinkühler et al, 2023). Once these barriers have been overcome, they need to apply on the basis of a medically certificated impairment. The application process can cost time, energy and sometimes even money. Students reported a lack of information, long waiting times and unclear bureaucratic processes. Some of them talked of having to travel long distances to see specific doctors who would issue the necessary medical certificates. In some cases, students also had to pay for these certificates themselves. If these students must renew their application every year – as some faculties require – applying for individual accommodation means a great deal of effort to the students and can in itself be a barrier.
Additionally, individual accommodation involves a great deal of effort not only for the students but also for the university staff. At the German university where we conducted our interviews, each faculty accepts and handles applications on its own. The staff and the responsible professors review the applications, check them for form and plausibility, and must decide, if and to what extent students can be granted individual accommodation. These decisions are often based on previous decisions and experiences, rather than on official guidelines or laws. The small number of cases handled by individual faculties makes it difficult to build up experience and develop best practice. Thus, staff reported of uncertainty in dealing with individual accommodation requests.
The question of legitimacy
The lack of guidelines on the appropriate form and scope of individual accommodation creates uncertainties that undermine its legitimacy. Students who used individual accommodation reported that both, students and lecturers questioned the fairness of their accommodations. For example, fellow students asked them about their “advantage” and asked for advice on how they could get access to it so that their studies would be “easier”. Thus, students with disabilities who use individual accommodation often doubt its fairness and necessity, while simultaneously lacking an objective perspective. Social networks and previous experiences of accommodation can help in legitimizing accommodation and supporting the experience of studying as an equal.
Individual accommodation creates individual dependencies
Students also emphasized that individual accommodation strengthens the influence of individual people. To receive individual accommodation, students become dependent on doctors, university staff, lecturers and professors. While all of these can be helpful – and many students reported of positive and supportive encounters – this dependency can create impossible barriers. Students, whether they experienced negative or positive situations, highlighted this dependency as problematic. At every step, individuals can act as gatekeepers and prevent them from receiving the accommodations they need to rightfully study. For example, a student reported that he has to write several emails before every exam just to make sure the lecturers organize the accommodations that he is entitled to – and still does not always receive them. Another student was told by the university staff that the accommodation they requested would not be necessary, even though they provided a medical certificate. Many students shared stories of just being ignored by their lecturers, or of lecturers telling them that they did not have the resources to provide appropriate accommodations. Thus, individual accommodation was often experienced as creating an additional work load for the lecturers. In the worst case, these experiences can lead to students dropping out and missing the chance to pursue an academic degree; which is directly linked to the opportunity for students with disabilities to live a decent and independent life.
Accessing individual accommodation requires individual resources
Lastly, our interviews showed that the process of accessing individual accommodation requires resources that are unequally distributed. Students from academic backgrounds, with extensive financial resources or extended social networks are better equipped to access individual accommodations. They can get a second opinion from another doctor, receive information on how to formulate applications, how to appeal or even legal advice. Further, dealing with the problems of gatekeeping also appears to be a gendered issue. Women in particular reported being doubted by others. For some, this went as far as medical gaslighting, the experience of being systematically doubted by medical professionals. Some of those who experienced these doubts resigned themselves when they encountered someone who did not want to believe or support them, rather than fight for their rights. Thus, not all students have equal access to individual accommodation. For some, receiving information about their rights, attaining a medical certificate, applying for individual accommodation,or dealing with gatekeepers is more problematic than for others. So, while other researchers have highlighted differences between students with obvious and stable disabilities and those with invisible and variable disabilities (Goldberg, 2016), our research showed that social networks, academic background, and gender of the students play an important role in the use of individual accommodation.
Concluding remarks
While we have focussed on the ways in which individual accommodation hinders inclusion, students and university staff also emphasized the positive aspects of individual accommodation. If there is a supportive culture and university staff have adequate resources, focussing on the individual needs allows them to find appropriate solutions and highlights the individual situation of each student. Students can feel heard and their disadvantages can be properly compensated for. However, this is rather the ideal case scenario. In our interviews, students reported a lack of a supportive culture in many disciplines, and in society in general, while the staff and lecturers experienced individual accommodation as demanding in terms of time and resources. We can therefore conclude that relying on individual accommodation to include students with disabilities can create significant barriers that can (re)produce exclusion. Universities should therefore rethink the way they implement inclusion and instead refer to measurements of universal design.
Pascal Angerhausen is a research assistant and doctoral candidate at the International Center for Higher Education Research (INCHER) at the University of Kassel. Email: angerhausen@incher.uni-kassel.de
Shweta Mishra is the Managing Director of the German Institute for Interdisciplinary Social Policy Research. She is the Associate Editor of the Research into Higher Education Abstracts Journal. Her research focuses on social inequalities in higher education access and outcomes. She is an associate member of the International Centre for Higher Education Research (INCHER) at the University of Kassel.
References
Gattermann-Kasper M, Schütt M-L. (2022) Inklusive Hochschule. Konzeptionelle Grundlagen, aktueller Stand und Entwicklungen. In: Recht der Jugend und des Bildungswesens, 70, p. 92-106
Goldberg, C (2016). Is Intersectionality a Disabled Framework? Presenting PWIVID: In/Visibility and Variability as Intracategorical Interventions Critical Disability Discourses, 7: 55-88
Steinkühler J, Beuße M, Kroher M, Gerdes F, Schwabe U, Koopmann J, Becker K, Völk D, Schommer T, Buchholz S (2023) Die Studierendenbefragung in Deutschland: best3. Studieren mit einer gesundheitlichen Beeinträchtigung Hannover: DZHW
